Our Second Annual March for Babies

May 9, 2012 at 8:00 AM | Posted in Baby Romaezi | 1 Comment
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Kamran is only 13 months old and has now officially participated in two March of Dimes walks.  This past weekend was the March of Dimes March for Babies annual walk.  This year we recruited friends and family to join us!  I want to share a special thank you to the friends and family who walked with us this year.  It meant more than you will ever know.  Same goes to the friends and family who sponsored us by making donations to the March of Dimes.

Last year Kayvan and I took Kamran and participated in the March for Babies together for the first time.  We raised $180 between the two of us in only a matter of a few weeks.  With more time this year, we were determined to do better.  This year Kayvan and I raised $1,225 between the two of us AND had a few friends join in on the fundraising fund.  I am proud to share that I raised over $1000 making me a March for Babies top walker.  With the joint effort of our family and friends, we raised a combined total of $3,080 for the IFHC – NICU March for Babies team.  Our friend Beth who joined us also raised over $1,000 as well.  Beth and I were so proud of the funds we raised that we decided to branch out and form our own family team next year.  That means you can expect lemonade stands, bake sales, perhaps a Loopsi Daisy hat promo and lots of donation requests going out to local businesses we frequent–in addition to all of the fundraising efforts we typically put in with our friends.

I remember last year’s walk was super emotional for me.  This year the emotions were a little easier to manage with friends joining us.  It probably also helped that friends read the tribute signs along the route before I did and would say “Don’t read that one, it’s sad!”  At one point a friend told me not to read a sign moments after I heard a woman say, “Oh here is our sign.”  I of course read it and asked another friend if it was too late to give the woman a hug.  Her baby had anacephaly and was born in silence.  5 days later she lost her husband.  I didn’t know how to react after I read her sign knowing it was hers and she was standing right next to me for at least 1/4 mile.  The walk certainly helps us keep perspective on just how fortunate we are.  Yes, we were dealt a tough hand at the start but everyone is healthy today–and that is what matters.

Here is a photo of the 3 of us at the end of the walk.

The finish line! Our second March for Babies Walk

 

 

 

 

 

 

 

 

 

 

 

 

More photos are here:  http://theromaezis.smugmug.com/Friends/March-for-Babies-2012/22878578_RGc7RX#!i=1837158780&k=SdkR4NS

 

World Prematurity Awareness Day

November 18, 2011 at 2:52 AM | Posted in Baby Romaezi | 2 Comments
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November is Prematurity Awareness month, the 17th specifically is World Prematurity awareness day.

Reading so many stories of preemies has brought forth a lot of emotion for me today. Before I turn this blog into something deep, I share with you one way in which I raised awareness today. Below is a snippet of conversation with a coworker. I won’t generalize and mention her hair color, but it certainly doesn’t match mine. We often write quotes like the one I share below on our board and tease her when necessary.

Me: You’re wearing purple, happy prematurity awareness day!

K: Right, because I’m so mature.

Me: (giggle–then I realize she wasn’t making a joke) Wait, you do know what prematurity awareness means, right?

She didn’t. Of course I filled her in–then wrote this conversation on our white board.

This day obviously held much deeper meaning for me than for my coworker.

I spent some time when I woke up today and this evening after work reading the preemie (I will abbreviate) Awareness Day Facebook page. Mostly happy stories were shared and occasionally sad. Whenever I see stories of 20 something weekers, I always well up. If there is one thing this whole experience taught me, it is that you truly cannot understand the depth of some things without experiencing them firsthand.

I am lucky to be able to say that I didn’t have a 23 week preemie. Last December, doctors thought I would. When my water broke at 23 weeks 2 days I was told I HAD to make it to 24 weeks to give Kamran the chance to survive. I was also told that there was a very high likelihood of delivering within 72 hours. Further, if he were to be born at 24 weeks and survive, he would face serious challenges. This information changed me forever. It rocks you. Hearing it makes you numb–lost in a dark abyss. On the shallow end, the perfect pregnancy you were expecting is suddenly out the door. Forget all of those cute pregnancy clothes you invested in, they will just sit in your closet and taunt you when you are fresh out of the hospital and no longer pregnant. On the deeper end, visions of meeting your perfectly pink and chubby baby for the first time fade into the fear that you may not actually meet your baby at all. From there the thoughts just spiral, can my marriage handle this, I’ve failed my baby and my husband…all among the medication, doctors, nurses, blood tests and the barrage of stimulation that is hospital life.

Being in labor at 23 weeks is so many things. Number 1, it is scary. More scary than I imagine normal full term labor to be. At 23 weeks, you aren’t supposed to be there. You have no control over the situation you are in and are entirely at the mercy of medical professionals to save your baby’s life and keep you safe in the process. I can’t even accurately paint the picture of emotions I went through last December. But I was scared.

Knowing what we went through and NOT having a 24 weeker, I cannot begin to imagine how much more scary it would have been to actually have had Kamran at 24 weeks. To those parents who have realized those fears, I tip my (crochet) hat.

Knowing just how lucky we got off, most days I feel silly calling Kamran a preemie. He was born at 35 weeks. He was practically term! It pales in comparison to what could have been but thankfully was not. However, we spent 33 days in the NICU. Kamran had his own set of challenges and he certainly was a preemie regardless. I am thankful that I did not have to realize the fear of being mom to a 24 week preterm baby and am oh so happy for my happy healthy 8 month old boy born only 5 weeks early.

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