The Romaezis

Reclaiming My Status as a Functioning Member of Society

With each task that I do on my own, Kayvan and I joke that I’m well on my way to becoming a functioning member of society again. It started with little things like making my way back to sleeping in our bed instead of the recliner, climbing the stairs, making sandwiches for lunch, the things I used to take for granted. Yesterday I was hell bent to do two things 1) go grocery shopping and 2) cook dinner (which has been Kayvan’s job forever. My work schedule used to put me home too late to cook and eat at a decent hour.)

I informed Kayvan of my first goal and he reminded me that I still shouldn’t be lifting or doing stairs more than necessary, hence I could not go grocery shopping. Wrong. This meant I couldn’t load and unload the car. So we decided that I would go to the store an hour before he got off work and he would meet me there in time to do the loading and unloading. Needing his help for grocery shopping means I don’t quite get the gold star for that task yet but I think I’ll give myself the bronze. I drove there on my own though!! I did cook dinner on my own last night as Kayvan reorganized our collection of DVDs into a DVD binder for space saving purposes. Dinner was quick and easy but it was yummy! A simple tomato basil pasta with chicken sausage. Not sure what I’ll make tonight but you bet I’m cooking.

Things that do not make me a functioning member if society. Taking Kayvan’s keys AND mine when we have a double deadbolt on both doors and he has to drive somewhere while I’m gone. Oops. He could have gotten out the garage (our fire plan) but couldn’t drive where he had to go once he got out of the house because I had the keys!! My poor friend who was out with me before I started driving on my own again had to take me home so I could give Kayvan his keys. I blame baby brain.

I’ll get there, slowly but surely, I’ll be the independently functioning person you all once knew and loved. Until then, I’ll try not to let my dependence drive me (or Kayvan) bonkers.

As for Kamran, he had a Brady spell again last night so we reset the clock and wait another 72 hours (or more if he has another). He’s really started gaining weight too. He went from 5.5 lbs (five and a half) to 5 lbs 9 oz. The nurse said she had to weigh him twice because she didn’t believe it. The scale could have been off a bit, or they could have used a different one from last time. The last time he had a big jump he lost a little the next day so tonight we will see how he does.